Inspired

Inspired by @chrondetermined asking for some positive stories about #Lymedisease, I am thinking about the many ways our experience of Lyme and Bartonella infections made our lives better.  Our whole family is healthier and stronger because of the diet and lifestyle changes we have made together. We live more simply, and truly understand the value of a ‘good day’. We are more supportive of each other. We know what really is important. Most significantly, we have become much more compassionate people than we were before Lyme disease entered our...

Dr. Horowitz “…antibiotics were an effective treatment…” Grateful studies show what many of us know through experience. #lymedisease

Dr. Richard Horowitz commented on a study showing tetracycline antibiotics were an effective treatment for some schizophrenia symptoms. He also addresses the connection between tick-borne diseases such as Lyme and Bartonella, and treatment resistant depression, anxiety, rage and neurological problems. Dr. Horowitz concludes, “It is therefore plausible that a certain number of cases of severe psychiatric presentations are due to underlying infections, especially since Lyme disease is the number one spreading vector borne infection in the world.” I was perplexed when my son’s behavior problems – including hyperactivity, depression, rage and OCD – would go away with antibiotics and return within several weeks of stopping their use. Also, how inflammation (usually related to diet) would often result in behavioral and neurological symptoms. I’m grateful to see that studies are showing what many of us know through experience, and support the idea that medicating psychiatric symptoms is not enough....

Speaking with VHD’s director about #MSIDS and living with #lymedisease

I would like to add to yesterday’s post that Dr. Chen also inquired about my experience with Lyme disease, and listened respectfully when I shared our story of constant relapse, severe neuropsychiatric symptoms, and the social, professional and financial challenges we faced while trying to obtain adequate treatment for our son. I am hopeful that the complexities of Tick-borne disease are beginning to be understood by the medical establishment, and I appreciated the opportunity to share our experience with someone who has the power to change how the medical community treats Lyme and MSIDS...

Good News!!

I was excited to get a call at home from Dr. Harry Chen, Commissioner of the Vermont Department of Health. He let me know that the VDH will be making many of the changes I advocated for to the Lyme disease section of their web page. These include adding information about chronic manifestations of the disease, reorganizing available information, and removing links to outdated and biased websites. Hopefully these will be implemented sometime...

Notes

My current internship involves developing a program for pediatric illness management. I propose that any chronic pediatric illness, whether Lyme disease, diabetes or asthma, cannot be treated without addressing the health and well-being of the child’s family. Siblings are affected, marriages and finances are challenged, careers are put on hold, routines changed, and plans deferred. The module I am developing helps parents to acknowledge these effects, and creates a system for making personal and lifestyle changes that can help a child – and their family-...