New Beginnings

It has been a busy time –getting ready to launch the full version of my new website, caringforandhealing.com, and share my work at the Lyme Disease Association’s Health Fair in Danbury, CT on May 12. There were moments in graduate school when I wondered if I was on the right path. Then I would be connected with a family like mine, affected by pediatric Lyme disease, who appreciated the information and ideas I had to share. This was a reminder of the need for a better understanding of both tick-borne disease, and how one child’s illness or disability can affect a whole family. I am grateful to be able to do this work, and have decided to make as much of it as I can available for free on the new website, which will be finished in May. I have taken a studio space at the Compass Music and Arts Center, and will continue selling my jewelry and art to help support my work with children affected by Lyme and tick-borne illness, and advocacy for families. After taking time off to work on my thesis, it is fun to get back to creating artwork – and I look forward to sharing it on this site....

Speaking with VHD’s director about #MSIDS and living with #lymedisease

I would like to add to yesterday’s post that Dr. Chen also inquired about my experience with Lyme disease, and listened respectfully when I shared our story of constant relapse, severe neuropsychiatric symptoms, and the social, professional and financial challenges we faced while trying to obtain adequate treatment for our son. I am hopeful that the complexities of Tick-borne disease are beginning to be understood by the medical establishment, and I appreciated the opportunity to share our experience with someone who has the power to change how the medical community treats Lyme and MSIDS...

Good News!!

I was excited to get a call at home from Dr. Harry Chen, Commissioner of the Vermont Department of Health. He let me know that the VDH will be making many of the changes I advocated for to the Lyme disease section of their web page. These include adding information about chronic manifestations of the disease, reorganizing available information, and removing links to outdated and biased websites. Hopefully these will be implemented sometime...