My interest in the way families and communities are affected by chronic illness or disability comes from my experience parenting a young child with neuroborreliosis – neurological Lyme disease.
I have advocated for people affected by Lyme disease, speaking as a trained mental health professional and as the parent of a child healing from a complex tick-borne illness.
Vermont is often highest in the USA for incidence of Lyme disease, yet had no organizations addressing this issue. In 2015, I began VTLyme.org with the goal of providing prevention education, equitable information, and support for Vermonters affected by tick-borne diseases.
I speak to health providers and education professionals about the psychiatric and cognitive manifestations of tick-borne illnesses. I also give presentations about the way acute and chronic disease affect family systems as well as individual patients.
For more information about tick-borne diseases in Vermont, visit VTLyme.org.